My mum suffers the hell which is CRPS 24 hours a day,7 days a week,and must accept she will never be cured.
CRPS scores higher than amputation on the Mac Gills pain chart, scores higher than cancer+childbirth. The difference being,you wil recover from amputation,carncer and childbirth,CRPS pain is constant.
My mum was diagnosed three years ago, was caused after a botch-job operation to fix her shattered wrist.With CRPS, you must be diagnosed within the first three months to benefit and prevent this awfull beast from taking over your body.My mum wasnt diagnosed for six months,the doctors there were clueless.
Up untill the day of her fall, my mother has raised all three kids single handed, as well as having full time employment as an auxiliary nurse.
After the diagnostic of the beast CRPS, my mum was resieving ESA max payments.Months later she had her benefit dramaticly reduced, then dicided to appeal, and won. Just a couple of months after the same thing again,so she dicided to appeal again, and has recently been informed that she's no longer intiteld and should sign on job seekers if she cant go to work.
Just to get out of bed in the morning is a battle in itself,then theres all the pills, then the battle of seeing the day through when all the time,she is on fire,like acid running through her vains. My mother has no use of her hand/arm,and will never regain its use.Her CRPS is now spreding to her other arm,and will continue, untill its striped her of everything. She's always been a strong independent hard-working woman. Now, she has to relay on her husband(who's been forced to take early retirement to care for her) to help her dress, help her shower, even to open a jar of jam.
Yet according to the benefits agency, my mum is 'fit-for-work' so will not be given any help whatsoever. Im disgusted, my heart bleed's for her, she would love to have her independance back and be back at work. But instead she must accept that her life as she new it is gone, for good, and theres nothing she can do to change it. Instead, she wakes(if she was able to sleep at-all) and must plan how she's going to make it through to the end of that day. Its not fare, I want my mum to be given her life back, she doesnt deserve this, she is unable to lift and hold my 16 month old daughter,with her heart screaming to be able to hold her.
ESA is a joke, its taking from the ill health people, and given hassle free to the addict's that are waiting, palm open ,who have and continued to avoid employment,whom just need to feed that self-inflicted habit. How is that rite? Where's the sence in any of it?
More than this, the thing that fills me with rage more than this stupid system, and all the scrounging fraudsters who get an easy ride, is the treatment my mother resieved in her ESA appeal. Its not enough for these people that she's been striped of her life, her indipendance, her dignity. She them has to stand there being questioned about the little she 'is' able to do, how she copes with going to the bathroom, and how and in which way she manages to put her bra and bottoms on each day. Come on, why not just finish her off my laughing in her face then pointing to the door. Surely this shouldnt be acceptible, its an outrage, its cruel, its wrong. I cant stop my tier's and this shaking everytime I think of the dispicable way my mum has been treated. I doubt anyone of those people at the appeal had even bothered to find out about CRPS, They have no idea, you wouldnt wish it on your worst enamy.
How dare they,,How dare they!